What Actually Happens in Pediatric Palliative Care | Dr. Justin Baker

Palliative Care Goes Digital: What Stanford Is Doing for Seriously Ill Children In this episode, Dr. Justin Baker, pediatric palliative care physician and director of the palliative care program at Stanford Children's Health, joins host Niki Weiss to explain what pediatric palliative care is, why it is not the same as giving up, how his team works alongside oncology and cardiology, and what quality of life means when the goal is not cure. CHAPTERS 0:00 Palliative Care Goes Digital: What Stanford Is Doing for Seriously Ill Children 1:11 Welcome Dr. Baker: how medicine school and his grandmother's cancer brought him here 2:45 What pediatric palliative care is and who it serves 5:20 The difference between cure-focused care and comfort-focused care for children 7:44 What a QOLA is: quality of life for all, including children with serious illness 10:15 How Dr. Baker's team integrates into oncology, cardiology, and neonatal centers 13:30 Why children with serious illness deserve an interdisciplinary team 16:08 What the goals of care conversation looks like with parents of a seriously ill child 19:45 How families are helped to hope for things that are actually achievable 22:10 Writing the grief and bereavement story from the moment of diagnosis 25:00 The stuck in a donut feeling: helping families make the least bad decision 28:15 Why so many people do not know that children get serious illness and die 31:00 Legacy work, memory making, and what palliative care does beyond pain management 33:31 Dr. Baker's takeaways: quality of life for all, interdisciplinary care, and legacy WHAT YOU WILL LEARN - What QOLA means and why quality of life for all includes children with complex and serious illnesses, not only adults near the end of life - How palliative care integrates into oncology, cardiology, and neonatal settings at Stanford and what co-management looks like in practice - Why Dr. Baker says his team is helping families write their grief and bereavement story from the moment of first diagnosis - What helping a family hope for realistic goals looks like when a child's prognosis is uncertain and what the least bad decision framework involves - Why legacy work and memory making during a child's final months are as important as symptom management and how palliative care supports both Start your plan and take the free assessment: https://finalplaybook.com/main-page LISTEN TO THE PODCAST Apple Podcasts: https://podcasts.apple.com/us/podcast/death-and-dying-in-the-digital-age/id1775499012 Spotify: https://open.spotify.com/show/2MQkOgvyPQnLEz1fO9BHkY Subscribe: @DigitalLegacyPodcast FOLLOW US Facebook: https://www.facebook.com/endevo.digitallegacy TikTok: https://www.tiktok.com/@endevo_digitallegacy Instagram: https://www.instagram.com/endevo_digitallegacy/ Download the My Final Playbook app: Google Play: https://play.google.com/store/apps/details?id=endevo.life.finalplaybook Apple App Store: [link coming soon] #deathandyinginthedigitalage #ENDevo #digitallegacy #digitallegacypodcast #myfinalplaybook Disclaimer: The Death and Dying in the Digital Age channel is for educational purposes only and does not provide medical, legal, or financial advice. Views expressed by the host and guests are their own. Always consult qualified professionals before making decisions. The channel is not responsible for actions taken based on its content. Re-uploads or ANY use of our content is prohibited.